HomeHyperparathyroidismThe Teenage Tumor and Me: My Mini-Parathyroid Surgery and the Norman Parathyroid Center

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The Teenage Tumor and Me: My Mini-Parathyroid Surgery and the Norman Parathyroid Center — 30 Comments

  1. Very interesting! In the video that showed the surgery up close, I didn’t see him check both sides, but on the video that’s narrated by the other doctor (the one where they’re always showing the clock) they made a point to say that both sides are checked and that they often find tumors on both sides, which sometimes contradicts the results of the scan.

    I also noticed a discrepancy b/t the vids regarding whether or not to snip pieces of all 4 PT glands. In one he recommends not doing it, but in the other they checked all 4 routinely.

    Both vids seem to be dated 2011. Perhaps years of experience separate when the vids were actually filmed, and a later one reflects changes in their technique and protocol based on new data and experience. I would be curious to find out.

    I enjoyed watching the actual surgery: I’m a veterinarian, and it was fun to watch a human surgeon at work and geek out about his surgical technique and be jealous that he had two assistants to retract tissue and hand him things…

    • There was a point where Dr. Norman was recommending a strict minimally invasive unilateral approach, to just get the tumor that showed.

      I read a paper he did on this (it’s linked from the site), and at the point where he discovered that something like 15% (I don’t remember right now) of his patients were returning with a second tumor, he reversed that and recommended checking all four glands every single time.

  2. So glad it is out–nasty little sucker! Even more delighted to hear of the almost instant improvement in certain areas. I hope it is all uphill (an easy uphill) from here.

    I am going to ask my nurse practitioner (we don’t get doctors in the Canadian North, they’re too rare) to see if I can get my blood calcium levels and parathyroid hormone levels checked. Since I see a nurse practitioner, I will probably do better than if I asked a doctor. I have all the symptoms except two; most notably high liver function tests and abnormal protein levels. So I think she will take me seriously.

    Thank you for taking the time to share this and for providing the link to such an excellent site.

  3. I’m really glad you found the cause of your suffering and fixed it! That must be a huge relief. I hope you recover quickly and enjoy your renewed health.

    • As a matter of fact, a stripe of leukoplakia that had been spreading along the underside of my tongue started receding almost as soon as the parathyroid tumor was removed. Two weeks to the day from the surgery, it’s now nearly gone.

      The dysplasia on the right side of my tongue doesn’t hurt as much either. That’s a health problem about which it’s difficult to get an objective measurement without going in and cutting out more of my tongue though. And the possibility of dysplasia becoming cancer is something I can’t ignore.

      I’d be thrilled if the dysplasia just go away, though.

  4. Yeah Holly, I hope you will do better now. Update on me. I’m home today! After 2 months in hospital I finally got to go home the day before Easter. I can’t tell you how happy I am. I’ve already overdone it, but I know better now. Best of luck to you and Happy Easter.

    Lynda Miller

  5. You have taught all of us a valuable lesson and I can not thank you enough. A plague on all the doctors who missed that which now seems obvious. I wish you the very best of luck in your recovery and extend a thank you to Dr. Norman for returning our teacher to us!

  6. Glad this went well and it sounds like it will make a lot of things better going forward. Thank you for sharing the information.

  7. That site is tremendous, and the videos are worthwhile.
    Noticed my calcium has been creeping up and was at max on the normal range last time it was testing. I know what I’ll be asking my doctor in June.

  8. Thank you for the updates and for the info about this. Wishing you a full and speedy recovery for both this & your upcoming surgery.

  9. How scary! I checked the site and read somewhere on it that people don’t make it over 25 years with one of those tumors. I’m so glad yours was caught in time. So are tumors like this only found thru blood work? I’m thinking something that big should have been felt at some point. Anyway, here’s to many more years of reading your books/taking your classes!

  10. I’m am glad that they found the cause of all your physical suffering. May your recovery be swift and complete!

    BJ

    • Thank you, BJ. I really appreciate it. I’m starting to feel better.

      Because that tumor was in there so long, it’s going to take me a little longer to recover. I’m okay with that. It’s out. I can move on.

  11. You know you had a good one when the doctor wants to put what he extracted on display as a warning to others, and labels it “teenage mutant ninja tumor” 😀

    And this is why I bang the thyroid drum loudly and often — it too is often downplayed or missed entirely, yet can destroy your life.

    Glad things are looking up. And next Halloween you’ve got your costume all ready: “…and this is where the vampire bit me.” 😀

    • Lol. There isn’t even going to be a scar. It’s a on-inch incision that they cut along an existing skin crease in my neck.

      I came home with a tiny Steri-Strip covering it, and that’ll come off on Monday.

    • “And this is why I bang the thyroid drum loudly and often — it too is often downplayed or missed entirely, yet can destroy your life.”

      I totally understand.

      I’m tempted to go crusading on parathyroidism.

  12. Wow, that is crazy stuff right there, especially the bit about a whole lot of doctors missing the damn thing.

    Hugs and glad you are already starting to feel better. Good luck on the next bit of ‘fixing stuff’ you need to do to be all the way back to better.

    • When I told my doctors I’d known about the tumor for all of three weeks before they were prepping me to remove it, they were astonished.

      After they took it out, they were angry. Dr. Norman said the doctors who had seen me over the years and who hadn’t caught this were “asleep.”

      He said a few more vigorous things, too—I really liked him. It was good to see someone passionate and angry about incompetence that cost me a lot of pain and put my life at risk.

      He said I needed better doctors—and I’m happy to say that now I have them.

      • Oh, wow, Holly–
        This is great news! I’ve “watched” you suffer so much pain over the past eight or nine years, and finally, finally, it looks like the medics finally figured it out. The end of migraines! Oh, man, that is terrific!

        I wish the rest of it (the tongue trouble) would disappear as easily (remember, ‘easily’ is a relative term here) and give you as much relief. Though there is more suffering in your near future (from the dreaded surgery), I hope that it will finally (that word again) end when the docs take away the bad cells from your tongue.

        You know, a lot of people wouldn’t have put in the work and time to track down this evil little tumor. Good on you, Holly, for once again putting your indomitable gene to good use. 🙂

      • I agree with him. (And probably all the ahem–more vigorous things–he said too.)

        It’s scary that this got missed for so damn long. Seriously scary.

        Very glad you now have better doctors. Hope that continues to be the case for you (and anyone else who runs nose first into something along these lines.)

        Will keep you in my thoughts as progress on the next surgery moves forward. Fingers x’d for an equally excellent result the next go round. (I know, I’m an eternal optimist… but you got this, Holly.)

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