HomeHyperparathyroidismA Sky Full of Stars: Hyperparathyroidism versus the Writer

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A Sky Full of Stars: Hyperparathyroidism versus the Writer — 20 Comments

  1. That’s great news, Holly. That’s what got me to act in my own case. The fog, that is. I don’t have everything back, but I have time outside of the fog, which is worth its weight in gold.

  2. Holly, this is genuinely wonderful news. I’ve read about your struggles with your health, from icepick migraines to the tongue issue; and hoped things wouldn’t get worse.

    Hearing that things are actually getting better, and substantially better at that, is amazing. I hope things continue to improve. You deserve it.

    • Thank you, Julian. I’m still having some headaches. I’m wondering if these are first-in-last-out symptoms, and if they’ll take longer to go away because I’ve had them so long.

      But even with them, I feel great.

      And the fact that I’ve started waking up at five AM again with story ideas and writing concepts…every freakin’ morning…suggests that the fact that this wasn’t happening for quite some time may not have been work exhaustion.

      I’m still working as hard as I was.

      I just feel worlds better.

  3. That’s fantastic news and not the kind I was expecting. O_O I’m definitely taking notes on this since I’ve struggled with low progesterone in the past and have had hints in the recent past that something might be going on with my thyroid. Thank you!

    • It wasn’t what I was expecting either, really. I went in thinking that I didn’t feel that bad. I new my blood calcium level was just awful, but I truly didn’t think it was having much effect on me.

      Now that the first stack of symptoms are gone, I realize how terrible I actually felt.

  4. Love this! It’s so funny when you realize that something had been gone all along without you noticing until it came back! I love your writing style! I also notice a couple of posts about the thyroid problem, so it’s obviously been affecting your life pretty significantly. It’s nice that you use it to come up with some great blog posts.

    • It was strange. And I’ve woken up every morning since eager to write.

      On my posts…I figure I get one shot at being alive—and I love being alive. If I learn useful things in the process, I share them, because that way even when I’m not around anymore, there will still be folks around who will maybe get to live longer or enjoy their lives more because I did.

  5. So good to hear you’ve joined the clan of Norman Parathyroid Center surgery alumni. Those of us whose lives have been impacted by this underdiagnosed (yet so easy to cure) disease are a very dedicated bunch. I bet you’ll become yet another strong voice bringing this underdiagnosed disease to greater awareness (and educating doctors along the way)

    Your description of the wonder of noticing the “brain fog” has lifted is spot on!!!

    For me and many others, you’re gonna find yourself with a sense of “times a-wasting” as you get on with all the time you lost during the years of hypercalcemia.

    How I came to know Jim Norman and subsequently to self diagnose myself years after meeting him might be of interest: http://dlmweb.com/demo/news68.html

    • I loved the Rolex story. And I agree with your description of Jim Norman on your blog. He’s good, he knows he’s good, and he lets it go at that.

      He was one of the funniest and nicest doctors I’ve ever met—and for ten years before I sold my first novel, I was an RN, mostly in the ER, but also in ICU and Med-Surg.

  6. Such a good result!

    This is really interesting as a specific symptom, because it implies that a particular bit of brain chemistry gets shut down by the hyperPT (or by some sub-effect thereof).

    And I would make this more general: If you experience ANY sort of persistent unexplained shift in how your brain works (including depression, fatigue, or “brain fog”), and you’re lucky enough to notice it — get an in-depth endocrine workup, because chances are something in that complex system has gone awry and is starving your brain, and no amount of merely treating symptoms will truly fix that.

    • I’d be interested to know if writers who’ve hit a writing dry patch that didn’t go away later discovered they had hyperparathyroidism.

      This isn’t the the most common thing in the world. Wondering, though, if those of us who wrote with our noses jammed up against CRT monitors for a decade or more are more prone to get them.

    • Well, they’re certainly fun to have. 😀 It’s a sort of “bubble-up” look at the world, that sets reality slightly askew and tosses a hint of mystery into each face and each shadow.

    • I’m grateful for it. Now I have to go back to see my GP to see once again if I can get cleared for the OTHER surgery. The one I’m not looking forward too.

      • I totally understand Holly! It’s unbelievable what hyperparathyroidism can do to a person and all the other “doctors” claim it’s not really happening, you just need to relax, you have anxiety and maybe some cognitive behavioral therapy will help. And then you go and see Dr. Norman and it all changes!

        • Yeah, being told, “It’s just that your in your forties now,” and then, “It’s just that you’re in your fifties now” is not helpful.

          REALLY not helpful.

          If you used to feel great, and suddenly you don’t feel great anymore, assume until proven otherwise that the problem isn’t in your head.

          And then find a damn doctor who will assume the same thing.

      • Holly I had to inject parathyroid hormone every night for two years to rebuild the loss of bone density I had from taking pretnisone for several years due to my occular sarcoidosis and eye surgeries. The name of the medication was Forteo and you can only take it for two years or face worse side effects then the actual disease. I mention this because you may have to take a med for osteoporosis now, as para thyroid maintains your bonetissue. It is something to look into at any rate. My prayers are with you during all of this. Yours as always, Eileen P. Landreth, give my best to family….

        • Hi, Eileen! I’m so happy to hear from you. It’s been YEARS!

          I’ll have to have bone density tests, and checks on other things. I’m taking a plain old calcium supplement right now, though, and my parathyroid glands kicked back in pretty quickly.

          I know this because two days after the surgery, I was a few hours late with my morning calcium, and had numb lips and fingertips to remind me not to do that again. Yesterday, because it was a day off and I’m still not back to full energy yet, I slept in until noon with no side effects (though I did take my catch-up dose).

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